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Did Autism Worries Affect Your Decision to Vaccinate?

Wed, 04/02/2008 - 6:00am by lilsugar
1,204 Views - 37 comments

So much about autism is unknown and though scientific studies say vaccinations are safe, some parents of children who have the developmental disorder voice concern.

Believing in motherly instincts as well as my pediatrician, deciding to vaccinate my daughter and son was very difficult.

Did you have this dilemma? What did you ultimately decide to do? Source

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37 Comments Add a Comment

  • erinflower's picture
    erinflower
    1

    My oldest was diagnosed with autism, during that time the vaccination thing was all the buzz. My second son was a baby then so we decided to delay vaccinations and do them when he was older. After doing my own research I don't really believe that vaccines are causing autism. I do think there are risks and we should exercise caution in vaccinating our children, for us we choose to delay vaccines and are doing them one at a time.

    33 weeks 2 days ago Report Comment
  • Greggie's picture
    Greggie
    3

    No. I won't get into the full debate here, but that was not one of my concerns with vaccinating. My main concern is that they space them out properly and don't try to give too many at one appointment.

    33 weeks 2 days ago Report Comment
  • facin8me's picture
    facin8me
    4

    You would think if the government had conceded that vaccines cause autism, it would be huge news. But that's not what happened. What actually happened is that the family of a girl who had a rare, underlying mitochondrial disease received money from the government's vaccine injury compensation program. While she has autism-like symptoms, her actual problem is that she has a very rare disease that could have been triggered by something as simple as influenza. It's different than other autism cases, which have been shown in study after study to not be linked with vaccinations.

    33 weeks 2 days ago Report Comment
  • snarkypants's picture
    snarkypants
    5

    i do not have children, but when i do, i will get them vaccinated. i don't really believe much in the correlation between autism and vaccinations. i also do not want my child to have to worry about measles or any of those other diseases that are making a comeback due to a growing number of unvaccinated children.

    33 weeks 2 days ago Report Comment
  • LiLRuck44's picture
    LiLRuck44
    6

    Definitely not getting into a debate about it but yes, I do believe there is a link and no, I do not vaccinate my children.

    I also believe in the risk factor/trigger issue.

    33 weeks 2 days ago Report Comment
  • kikidawn's picture
    kikidawn
    7

    I am scared to death of something like this. I spoke with my sister-in-law about this (she is in Special Ed and has looked into this). And she said what happens is the child has a predisposition to Autism and the vaccines 'trigger' it and then the child begins to show signs of autism.
    I think I will do what Greggie was mentioning. -- Spacing them out and having the children get them at older ages instead of at such young ages!

    33 weeks 2 days ago Report Comment
  • roxtarchic's picture
    roxtarchic
    8

    bayside tiger.. ya might change your mind a lil when you have kids (and btw are you bayside queens?) i might have agreed w/you before i had our lil guy... then all of a sudden you start looking at everything differently. we are vaccinating him... BUT i'm very careful that he's only getting one at a time... and even tho they are recommending flu shots at 6 months... that's not something he's getting until he starts preschool.

    i find myself torn between wondering if parents are "blaming" or if the government is just "placcating" because there's more to gain in not making rx companies make changes and it would be more costly for them to have to regulate this more diligently... i also tend to lean more towards believing the parents... if the chemicals in toys and baby products that arent being addressed by the gov't is any indication of their priorities... because it would be clear that our children isnt one of them

    wow.. sorry for the soapbox, i'll try not to trip on my way off it!

    33 weeks 2 days ago Report Comment
  • fsquaash's picture
    fsquaash
    9

    Isn't anyone worried about diseases that kill? I might prefer Autism over POLIO, MEASLES, RUBELLA, AND PNEUMONIA if my child's life was at stake.

    Also, I'm tempted to say that those who don't vaccinate can't play with my kids. You don't get a free ride on my vaccinations and then expose my babies to horrible illnesses.

    33 weeks 2 days ago Report Comment
  • stina829's picture
    stina829
    10

    I agree with some of you - I'm not going to get into a huge debate over this because it's your child and your right to choose what to do in this situation.

    However.... I am having my son receive vaccinations. I do worry about the autism link, but if I don't vaccinate, I'd worry about the other diseases! I do only allow for him to receive two shots instead of the whole boatload in one visit. That's where I draw the line, you aren't poking my son in his legs 4 times, it's not going to happen.

    33 weeks 2 days ago Report Comment
  • romaniagrl's picture
    romaniagrl
    12

    I was concerned, so I read some articles, as well as spoke to my pediatrician, but I decided to go ahead. I don't believe vaccines cause autism.

    33 weeks 2 days ago Report Comment
  • romaniagrl's picture
    romaniagrl
    13

    Lickety Split, what did happen with your daughter? She had the vaccines and immediately started showing signs of Autism? I don't mean to sound ignorant, I just can't understand how you can attribute that to a vaccine unless you have scientific proof. I also believe in mother's intuition, so I am just wondering what happened?

    33 weeks 2 days ago Report Comment
  • litbear221's picture
    litbear221
    14

    I don't have kids yet, but I am almost more concerned with the fact that measles, whopping cough and other diseases are on the rise. My father had measles as a child and he remembers it, that how much he suffered. Whopping cough is also terrible, you can literally break ribs, especially if it is a young child that gets it.

    33 weeks 2 days ago Report Comment
  • ylatan's picture
    ylatan
    15

    we don't do immunizations, but for other reasons. like, ever read the ingredients list? or about the actual diseases?

    33 weeks 2 days ago Report Comment
  • anniekim's picture
    anniekim
    16

    I have had my girls vaccinated, but on a modified schedule to lower risk.

    askdrsears.com does a good job addressing both sides of the issue and offering a modified vaccine schedule. They have a book on vaccines coming out soon.

    It seems to me that it is very difficult to get the straight dope on the topic of vaccination. Both pro and con camps are very inflexible. The AMA and AAP both push vaccines and deny any problems. Anti vaccination groups (such as thinktiwce.com) are full of anecdotal evidence and horror stories.

    If any one can lead me to a source that discusses both sides of this debate in depth I'd sure appreciate it.

    33 weeks 2 days ago Report Comment
  • anniekim's picture
    anniekim
    17

    Shots in general are scary things.
    As parents, we are taking a huge leap of faith in allowing anything to be injected directly into our children's bloodstream.

    I don't have a lot of faith in the CDC or FDA to take universal precautions or thorough preventive measures.

    33 weeks 2 days ago Report Comment
  • lickety split's picture
    lickety split
    18

    romaingirl-okay, long story made short (er). my oldest daughter was typically developing BUT had a difficult time with her shots (yes i think it's a genetic predisposition). she was taken to the er a couple of times with bad reactions following vaccines for things like extreme irritability, vomiting, rashes, (as was our second daughter). w/i 20 minutes of her mmr she began screaming and screamed for 24 hours stopping only when she passed out. we have some of this on film because her younger sisters’ baptism party was happening that day. in the film, you can see her stumbling around, running into things and screaming at the top of her lungs. after this time, she started to have periods where she would look off into space and not hear what you were saying. it came and went. for over a year no one but me saw it because i was with her all day. during this time, i had her evaluated at the regional center, by our school district and her pediatrician. everyone said she was fine and that i was the one with the problem.

    at about 2 1/2, she cut her foot on a nail in our back yard and was given booster tetanus as a precaution. more, longer periods of "spacing out" and within a month her regression was obvious to everyone. she spoke less, spoke mostly in narration rather than to communicate and frequently confused words (balloon/barney, yes/no, car/go). she was reevaluated and they ran MANY tests (mri, blood work, etc. a titers was done (tells you the immunity various diseases). her titers were off the chart. she stopped sweating, was red and had a rash that covered most of her body. she wouldn't eat and was almost put on a feeding tube twice. when she did eat, it came back up or out the other end in liquid form.

    i did some research and found out that there are a number of children with autism who had a similar history. mercury poisoning from the preservative thimerosal was cited as the source by the parents and (two doctors). the theory is that the mercury crosses the blood brain barrier (which is not fully formed before 6 months of age) and the damage begins. as each subsequent vaccine assaults the child, the damage increases. the mmr has no thimerosal but measles portion of the vaccine is especially harsh on the little systems that have already been traumatized.

    my daughter lost all speech a couple of years ago. she can no longer immitate so she can't use sigh language and doesn't understan a picture exchange system. she is heavily medicated to keep her from tearing herself apart (biting, throwing herself against the wall and onto floors, pulling out hair and scratching at her eyes) and screaming as if she is on fire for hours at a time. she suffers everyday in ways that i cannot help because she cannot communicate.there are things worse than death. no more vaccines at our house.

    33 weeks 2 days ago Report Comment
  • supermommie's picture
    supermommie
    19

    I agree that we need to watch things over time. My daughter has cerebral palsy. It wasn't cause by vaccines or anything that the doctor did. In our case we are almost 100% sure that it was genetics.

    I vaccinated my daughter because the risks of not getting it bothered me more than the risk of autism. Perhaps if i had heard all of the glaring media I would have changed my mind. I don't think so, but maybe.

    SM

    33 weeks 2 days ago Report Comment
  • roxtarchic's picture
    roxtarchic
    20

    wow lickitysplit... thank you for sharing (im sure it's not so easy to do so). i like this site & forum for the wealth of information shared and what you can learn... your post is a prime example of that

    33 weeks 2 days ago Report Comment
  • DesignRchic's picture
    DesignRchic
    21

    anniekim, Dr. Sears has a book out that I'm considering purchasing. It's pretty neutral and doesn't sway you to think a certain opinion. It's called "The Vaccine Book: Making the Right Decision for Your Child"
    Lickety, your story always moves me. Thank you for sharing such a personal story with us all.

    33 weeks 2 days ago Report Comment
  • ufshutterbabe's picture
    ufshutterbabe
    23

    I will definitely vaccinate my children. And I'm totally with fsquaash, if you're not vaccinated, you're not playing with my child! All these anti-vaccination folks really ought to thanks us for keeping the "herd immunity" up.

    33 weeks 2 days ago Report Comment
  • lickety split's picture
    lickety split
    24

    you'll probably want to home school then because vaccines aren't required for children to go to school in the united states. by signing the back of the immunization schedule at their child's school parents are (by law) allowed to choose not to immunize. and you aren't entilted to know what choices other parents have made so to be safe be sure and keep your children at home Smiling and thanks, you choosing to immunize and for saving tax dollars by homeschooling!

    33 weeks 2 days ago Report Comment
  • ylatan's picture
    ylatan
    25

    and, if you're so confident in your vaccines, why are you worried about letting your child play with mine? really. your kid is vaccinated, so they should be safe, right? yeah, right.

    33 weeks 2 days ago Report Comment
  • stefsprl's picture
    stefsprl
    26

    I don't have kids yet, but my husband and I have already discussed that we're not sure if we will vaccinate or not...my guess is that we will, but at an older age and more spread out than they normally do them. I have a friend, though, who had a really hard time with getting both her son and daughter into their elementary and preschools because they hadn't been vaccinated. They had a history of autism in her family, so they had held off while they were little, but since they were 7 and 4 1/2 at the time they went ahead and did it since they were past the typical age of concern.

    33 weeks 2 days ago Report Comment
  • anniekim's picture
    anniekim
    27

    lickety split--thank you for sharing your story. I must be difficult to detail it, but I think it helps us all to develop compassion.

    designRchic--thanks. I think I will get that book. I think highly of the Doctors Sears.

    Whichever side of this issue you come down there is a lot to consider. There is a tremendous amount of pressure in this country to vaccinate 1st, ask questions later.

    33 weeks 1 day ago Report Comment
  • VSug's picture
    VSug
    28

    First off, and it might just be me, but I don't recall seeing a poll with members having so much to say. That's terrific.

    In April, Jenny McCarthy will be hosting the premiere of a documentary film one of my best friends produced, called "Autism Yeserday". Lucky for me, I get to go. This same friend and her husband co-founded a non-profit called, Generation Rescue.

    I urge all concerned moms, as well as moms with kids with autism, to check out the group's website: generationrescue.com

    VSug (formerly known as Vster)

    33 weeks 1 day ago Report Comment
  • KAEB06's picture
    KAEB06
    29

    We have had many delays with my son since his vaccines and we actually stopped vaccinating him at 9 months (he didn't get the MMR)...with the research I have done, our experiences this last year and my first hand encounters with other parents dealing with the same issues...we will NOT be vaccinating any future child.

    33 weeks 1 day ago Report Comment
  • stina829's picture
    stina829
    30

    licketysplit, I am so sorry that you and your child and your family had to go through that. Thank you for sharing your story. Now I'm definitely going to do some more research and have a long talk with my son's doctor before he gets any more vaccinations. It helps to actually hear someone's story.

    Thanks again. I really do appreciate it. Smiling

    33 weeks 1 day ago Report Comment
  • facin8me's picture
    facin8me
    31

    While I find personal stories of autism moving and heartbreaking, it is important to remember that these personal stories of autism have led scientists to repeatedly study if there is any causative effect between vaccines and autism. Again and again, scientists (government, private, and public) have found no link. There are a few competing (or complementary, depending on how you look at it) views on how vaccines might be involved in autism- but these all lack a biological basis (though you wouldn't know it by some of the pseudoscience thrown around the anti-vaccine community). I think it's important to follow your motherly instincts, but I also think that you need good sources to help you distinguish what is fact from hysterical fiction when you make your choices. Good places to look are Pubmed (http://www.ncbi.nlm.nih.gov/PubMed/) and the Institute of Medicine's report on vaccines and autism. Organizations like Generation Rescue are not reputable sources for information- their website contains discredited papers, amateur speculation, and support for dangerous treatments such as chelation therapy.

    There is no government conspiracy to keep a dangerous product on the shelf to protect drug companies- it doesn't make sense because autism will ultimately cost educational and social services in cities and states more than the drug companies will lose to simply change a formulation. While some children with autism make gains and can live a relatively normal life, others will need care long after their parents are gone- often this care will fall on social services.

    It's funny, because people always say that more research needs to be done on this subject but there have been several huge studies, two just released in the past few months, that refute the autism-vaccine link. The question becomes- what scientist or epidemiologist in their right mind would get involved in this research if it's simply not going to be believed? Much of this research is public and not done by pharmaceutical company scientists. And if people don't want to become involved in finding a cause because they won't be believed, how does that impact future children? If we keep on recycling the same tired hypothesis, who wins?

    33 weeks 1 day ago Report Comment
  • DesignRchic's picture
    DesignRchic
    32

    You're welcome anniekim Smiling I hope that book helps both you and I understand vaccinations a bit more.
    This conversation is a good one. No flying fists, just a good discussion IMO. Facin8me, you bring up some really valid points.

    33 weeks 1 day ago Report Comment
  • romaniagrl's picture
    romaniagrl
    33

    Thanks Lickety, I really feel for your daughter and your family. I can see why you came to the conclusion that the vaccines might have played a part in her problems. Sometimes doctors and scientists don't know everything. I've come to that conclusion from my own past experiences. I guess we all have to try to do what we think is best for our child.

    33 weeks 1 day ago Report Comment
  • loislane47's picture
    loislane47
    34

    I have a weekend gig as a behavioral therapist to an Autistic child. While I do believe most of it is genetic predisposition, his parents have video before AND after he recieved his shots, and watching his degenerative behavior was heartbreaking. After his sister was born, his parents opted to not give her any shots and she's perfectly normal. I think we can all agree that each mother must do what is right for her child, but we should also keep in mind that 95% of children are born with immunity to diseases that hardly exist today. While the CDC denies that vaccines cause autism, 1 in 150 children have autism in America, so obviously, something is up. My experience with this family and working with other Autistic children has made me think twice about vaccinations. I won't be vaccinating my own children due to my own research, but to each his own. Also, I think flu shots are a hoax and should definitely not be given to infants. I've never had one and won't.

    Autism Speaks.

    33 weeks 1 day ago Report Comment
  • fsquaash's picture
    fsquaash
    35

    I'm not sure what state the rest of you live in, but we're required to vaccinate before public school entrance in our state.

    In general, I would recommend that parents choose their medical treatment for their child. But if they are putting the rest of us at risk (even vaccinations--like seat belts--are not foolproof), then they don't play with my kids.

    I think we're going to look back at this vaccine-autism craze in 10 years and be embarrassed by our rush to judgment against all scientific evidence.

    33 weeks 1 day ago Report Comment
  • loislane47's picture
    loislane47
    36

    Actually, a doctor can write a note to the school system on a parent's behalf if they choose not to vaccinate their child. While most states and school systems "require" certain shots, they don't all require the 36 shots now recommended for each child. Legally, the state can't discriminate against a child whose parents choose to not vaccinate them due to equal opportunity laws. Fortunately due to those laws, other parents have no jurisdiction over another child's shot record nor are they allowed to know which children have or have not received their shots.

    Also, I believe that having a "your child can't play with my child" attitude simply because you don't agree with another parent's decision is teaching your children it's okay to discriminate and undermine an adult's careful decision. Vaccinations are not a cure-all, simply a preventative measure. Unfortunately, I disagree with people scoffing at trying to nail down what triggers Autism. It is an incredibly serious and heartbreaking condition which affects 1.5 million Americans and causes over 90 billion dollars in health care costs each year. Having a cavalier, germ-phobia attitude is a slap in the face to parents with Autistic children and others who struggle with the decision to not vaccinate their children.

    33 weeks 5 hours ago Report Comment
  • VSug's picture
    VSug
    37

    Now I have to go and update my profile once again. So many of you are now my heroes! (Remember that section.) Though I have no fist-hand experience with autism or cerebral palsy, nor am I a mom, I just know in my gut that your children hear you and feel your devotion and love. You are really amazing women.

    xoxo,

    VSug

    32 weeks 6 days ago Report Comment

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